Showcase
Inside the registry
How much data there is, where it comes from, and how it has been maintained since it was first entered.
- Patient records
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- Institutions
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- Countries
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- Records with an edit log
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Records entered over time
The time axis on this page is the data-entry date — when a record was created in the registry. It is not the date of surgery, diagnosis or follow-up, and the two can be years apart.
Year-by-year entry volume is not published on the public endpoint.
The per-year series is available to authenticated investigators in the analytics dashboard. Rather than reproduce a figure this page cannot verify against the live API, it is omitted.
Which source counts what
Record counts and creation dates come from the records themselves and are complete for the whole registry. Edit counts come from a separate submission log that was switched on partway through the study. The two must never be mixed: a “records created” figure taken from the log would under-count the registry.
Geographic reach
Participating centres, and how they group by region. The map shows each centre’s location only; no per-centre patient figures are published here.
Institutions by region
The regional breakdown is not currently published on the public endpoint.
How the data has been maintained
A registry is not written once. Records get corrected, completed and revised as follow-up arrives, and the platform keeps that history. The figures below describe the whole registry in aggregate; no institution and no individual is identified.